Comments for Hopingnotcoping's Weblog http://hopingnotcoping.wordpress.com Just another WordPress.com weblog Sat, 17 Oct 2009 14:05:37 +0000 http://wordpress.com/ hourly 1 Comment on Celebrate Good Times Come on. Come on! by blackknightsbrood http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-358 blackknightsbrood Sat, 17 Oct 2009 14:05:37 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-358 You're not alone. With so much love, come acceptance and hope, and also worry and wishing and wondering. Life is just tougher with the challenges that autism brings and there's always the unknowing of how things will look in the future. And the wish that our kids didn't have such a steep climb. It's hard! You're doing a beautiful job. Keep the faith :) You’re not alone.

With so much love, come acceptance and hope, and also worry and wishing and wondering. Life is just tougher with the challenges that autism brings and there’s always the unknowing of how things will look in the future. And the wish that our kids didn’t have such a steep climb. It’s hard!

You’re doing a beautiful job.

Keep the faith :)

]]> Comment on Celebrate Good Times Come on. Come on! by Jennifer http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-355 Jennifer Thu, 15 Oct 2009 22:03:16 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-355 Can definitely relate. I love my boys so much, and I do accept who they are, but, there are still "those days," even after so many years. The boys recently turned 18 and 16...one day apart. Those are usually two very significant birthdays. But, Matt won't be getting a driver's license, and Kyle does not gain the typical rights of adulthood...we are actually in the process of gaining guradianship of him---almost sounds kind of silly that we have to get guardianship of our son! Their birthdays were on a weekend, and leading up to it, I really thought I would be okay. And I was, but there were a few tears---nothing big--- at some point in the day that I hadn't expected. :-) Can definitely relate. I love my boys so much, and I do accept who they are, but, there are still “those days,” even after so many years. The boys recently turned 18 and 16…one day apart. Those are usually two very significant birthdays. But, Matt won’t be getting a driver’s license, and Kyle does not gain the typical rights of adulthood…we are actually in the process of gaining guradianship of him—almost sounds kind of silly that we have to get guardianship of our son! Their birthdays were on a weekend, and leading up to it, I really thought I would be okay. And I was, but there were a few tears—nothing big— at some point in the day that I hadn’t expected.
:-)

]]> Comment on Celebrate Good Times Come on. Come on! by rhemashope http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-353 rhemashope Fri, 09 Oct 2009 20:32:46 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-353 I have more days like this than I care to count. Sometimes they're birthdays and holidays; other times they come out of nowhere and knock me down. Thank you for Lamentations 3; thank you for your beautiful sacrifice of praise in the midst of pain. Thank you for your faith in the waiting. Happy Belated Birthday, Josiah. Your wonderful face and happy eyes grace my refrigerator, and I love you so, even though I've never seen you in the flesh. I have more days like this than I care to count. Sometimes they’re birthdays and holidays; other times they come out of nowhere and knock me down. Thank you for Lamentations 3; thank you for your beautiful sacrifice of praise in the midst of pain. Thank you for your faith in the waiting.

Happy Belated Birthday, Josiah. Your wonderful face and happy eyes grace my refrigerator, and I love you so, even though I’ve never seen you in the flesh.

]]> Comment on Celebrate Good Times Come on. Come on! by hopingnotcoping http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-351 hopingnotcoping Thu, 08 Oct 2009 05:40:38 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-351 Thanks so much for the support, mommies. I'm feeling a lot better now. I find that when I'm tired and sleep deprived, I start breaking down a bit. I'm also learning that this sort of grieving doesn't arrive at a resolution that allows "time to heal," but has to go through a number of cycles and hopefully get stronger with each one. Thanks so much for the support, mommies. I’m feeling a lot better now. I find that when I’m tired and sleep deprived, I start breaking down a bit. I’m also learning that this sort of grieving doesn’t arrive at a resolution that allows “time to heal,” but has to go through a number of cycles and hopefully get stronger with each one.

]]> Comment on Celebrate Good Times Come on. Come on! by Jeni http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-350 Jeni Wed, 07 Oct 2009 01:55:31 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-350 Tahni - Thank you for sharing your pure, raw and real emotions. First and foremost you have to remember that your human and you are an amazing mom. But Lord, there are some days when it is too much for anyone to handle. Even a strong person like you. I sometimes feel like those are days that God is really testing my strength, you know. I just want you to know that you are not alone in the way you that you feel :) Josiah is so blessed to have you as his mother. Happy Birthday sweet little Josiah Tahni – Thank you for sharing your pure, raw and real emotions. First and foremost you have to remember that your human and you are an amazing mom. But Lord, there are some days when it is too much for anyone to handle. Even a strong person like you. I sometimes feel like those are days that God is really testing my strength, you know. I just want you to know that you are not alone in the way you that you feel :) Josiah is so blessed to have you as his mother.

Happy Birthday sweet little Josiah

]]> Comment on Celebrate Good Times Come on. Come on! by therocchronicles http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-349 therocchronicles Wed, 07 Oct 2009 00:28:33 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-349 You are allowed to feel all of this. I think every parent of a child on the spectrum goes through this. The grief. There is no expiration date on that. I had (and sometimes still do, I'll fully admit it) HORRID jealousy of everyone I know with "typical" children. Once we passed the "A" day and autism entered our consciousness it HURT so much to see how different he was and the pain of the difference was all consuming. You are allowed to feel this way. You are. Don't beat yourself up for it. It is a part of what makes you human. You don't love your son any less for wishing things were easier for him. You love him more. You are allowed to feel all of this. I think every parent of a child on the spectrum goes through this. The grief. There is no expiration date on that. I had (and sometimes still do, I’ll fully admit it) HORRID jealousy of everyone I know with “typical” children. Once we passed the “A” day and autism entered our consciousness it HURT so much to see how different he was and the pain of the difference was all consuming.

You are allowed to feel this way. You are. Don’t beat yourself up for it. It is a part of what makes you human. You don’t love your son any less for wishing things were easier for him. You love him more.

]]> Comment on Celebrate Good Times Come on. Come on! by ALICIA http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-348 ALICIA Tue, 06 Oct 2009 01:44:35 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-348 This post sounds to me like a Psalm. Please! Puke out the honest heart wrenching pain. Even if it wasn't blatant, your heart of praise to our Savior still resonates at the end of your puke out. I often ponder this when I see certain families joyfully accept autism, why does it hurt me so bad, and why can't I just accept it? Are they unloving to not work hard at discovering their children? Am I wrong for not accepting? I think for some, the Lord has given them the gift of peace, and others like me, he wants me to know him through the fight. Until the Lord gives me peace where my little kiddo is at, I'm going to keep fighting and not accepting. He will let me know when I can rest, and until then, I am trying to rest in His arm through the fight. Happy Birthday sweet little boy. I pray your 4th year will be filled with new discoveries. This post sounds to me like a Psalm. Please! Puke out the honest heart wrenching pain. Even if it wasn’t blatant, your heart of praise to our Savior still resonates at the end of your puke out.

I often ponder this when I see certain families joyfully accept autism, why does it hurt me so bad, and why can’t I just accept it? Are they unloving to not work hard at discovering their children? Am I wrong for not accepting? I think for some, the Lord has given them the gift of peace, and others like me, he wants me to know him through the fight. Until the Lord gives me peace where my little kiddo is at, I’m going to keep fighting and not accepting. He will let me know when I can rest, and until then, I am trying to rest in His arm through the fight.

Happy Birthday sweet little boy. I pray your 4th year will be filled with new discoveries.

]]> Comment on Celebrate Good Times Come on. Come on! by asdmommy http://hopingnotcoping.wordpress.com/2009/10/05/celebrate-good-times-come-on-come-on/#comment-347 asdmommy Mon, 05 Oct 2009 04:46:38 +0000 http://hopingnotcoping.wordpress.com/?p=291#comment-347 Um, I'm pretty sure that you are allowed to feel down every once in awhile. It sounds like somehow you got the idea that you are not allowed to feel this way EVER, and my advice to you (not that you asked for it...) is to lighten up on yourself, let yourself feel it, and then move through it - which is pretty much what you said you'd do, right? Cut yourself some slack, Mom! And then, when I post sometime about feeling this way, will you come over and remind me I said this? ;-) Um, I’m pretty sure that you are allowed to feel down every once in awhile. It sounds like somehow you got the idea that you are not allowed to feel this way EVER, and my advice to you (not that you asked for it…) is to lighten up on yourself, let yourself feel it, and then move through it – which is pretty much what you said you’d do, right? Cut yourself some slack, Mom!

And then, when I post sometime about feeling this way, will you come over and remind me I said this? ;-)

]]> Comment on Pitching My Tent in the Land of Hope by Judy Rotach http://hopingnotcoping.wordpress.com/2009/09/26/pitching-my-tent-in-the-land-of-hope/#comment-346 Judy Rotach Sun, 04 Oct 2009 22:59:24 +0000 http://hopingnotcoping.wordpress.com/?p=287#comment-346 Tahni, thank you for sharing your heart with the world. The creativity and words pictures you use bring such a reality to your journey with Josiah and enables those who love and hope with you to grasp just a little bit more what your world is like. Thank you also for the way you reach out to others who are hurting amidst your own pain to give a word of hope and prayer of grace. Love you my friend, Judy Tahni, thank you for sharing your heart with the world. The creativity and words pictures you use bring such a reality to your journey with Josiah and enables those who love and hope with you to grasp just a little bit more what your world is like.

Thank you also for the way you reach out to others who are hurting amidst your own pain to give a word of hope and prayer of grace. Love you my friend,
Judy

]]> Comment on Making Sense of Numbers by bruciesrecovery http://hopingnotcoping.wordpress.com/2009/08/25/making-sense-of-numbers/#comment-345 bruciesrecovery Thu, 01 Oct 2009 17:23:15 +0000 http://hopingnotcoping.wordpress.com/?p=258#comment-345 With every dime families spend its worth it, I was recently at a town hall meeting in support of Autism Insurance reform, and I spoke with a gentleman there, who was against the Health Care Reform, I informed him of the statistics and expenses families endure, he was shocked that Insurance did not cover the costs associated with Autism. Everyday I speak to individuals about awareness and the struggles we endure. Last year alone my wife and I spent $25000 out of pocket for therapy, its worth every dime to know that my son is on the right path towards recovery. Its very promising too that Legislation is in place to save us and do as President Obama hold Insurance Companies accountable. With every dime families spend its worth it, I was recently at a town hall meeting in support of Autism Insurance reform, and I spoke with a gentleman there, who was against the Health Care Reform, I informed him of the statistics and expenses families endure, he was shocked that Insurance did not cover the costs associated with Autism. Everyday I speak to individuals about awareness and the struggles we endure. Last year alone my wife and I spent $25000 out of pocket for therapy, its worth every dime to know that my son is on the right path towards recovery. Its very promising too that Legislation is in place to save us and do as President Obama hold Insurance Companies accountable.

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